Boy. It’s been a long time since I wrote. Today I’m off to the Environment clinic to see my Dr. We’re going to talk about my IV.’ s, as the last one I had was to strong and make me sick, it was called a Myer’s cocktail with Magnesium, Vit C, and the B vitamins and seemed to be too much for my system to handle, so we’ll talk about lowering the dose.
Also, I want to try the fibromyalgia drug, Cymbalta, I hear it’s good for pain and energy, and also helps with depression and anxiety, so it sounds perfect.
I have to go off the drug I’m on now as it altered my heart rhythm making my QT interval too long and posing risk of arrhythmia’s. Unfortunately, as I drop the dose my anxiety is coming back pretty strong so I have to get on something else fast.
My CFS has not been bad, I’m about 30 on the CFS rating scale. I was like a 10-20 most the summer, so definitely an improvement. I’ll make it out about 2 days a week, be up 1 or 2 days as long as I’m quiet , like reading, and sleep (crash about 22 hours) 3 or 4 days a week. I’m aiming for being up 5 to 6 days a week, but I need a protocol of some type to follow ie pacing strategies, daily short walks, easy stretching, good sleep patterns, mindfulness, the Cymbalta, IV ‘s, eating top notch foods and avoiding the gluten religiously and milk 90% of the time. Very hard to follow protocol though especially when I’m depressed/anxious.
So I’m hoping the Cymbalta will help me with that and increase my motivation.
I go to school now, part time, and I’m really enjoying that, tough it’s mind boggling sometimes. It’s been since 1996 since I was in school last.
Anyway, here is the CFS rating scale for others like me out there and anyone interested in general. Enjoy the autumn, Take care all.
CFS & Fibromyalgia Rating Scale
100 Fully recovered. Normal activity level with no symptoms.
90 Normal activity level with mild symptoms at times.
80 Near normal activity level with some symptoms.
70 Able to work full time but with difficulty. Mostly mild symptoms.
60 Able to do about 6-7 hours of work a day. Mostly mild to moderate symptoms.
50 Able to do about 4-5 hours a day of work or similar activity at home. Daily rests required. Symptoms mostly moderate.
40 Able to leave house every day. Moderate symptoms on average. Able to do about 3-4 hours a day of work or activity like housework, shopping, using computer.
30 Able to leave house several times a week. Moderate to severe symptoms much of the time. Able to do about 2 hours a day of work at home or activity like housework, shopping, using computer.
20 Able to leave house once or twice a week. Moderate to severe symptoms. Able to concentrate for 1 hour or less per day.
10 Mostly bedridden. Severe symptoms.
0 Bedridden constantly. Unable to care for self.